Another CT down…
September 1st, 2010I’ve already had one meeting this morning and Warren’s PT session… his OT session starts in about 25 minutes, so I found this little window for an update.
We headed to Duke yesterday for Warren’s CT and appointment with our neurosurgeon. The insurance issue was long and drawn out… never did get perfectly resolved… Tricare wants us to go to Womack… Womack really doesn’t want us because they won’t sedate him… blah, blah, blah. Our insurance girl worked very hard to do all that she could (Warren is sending her some chocolate-covered strawberries as a “thank you” because she does go beyond the call of duty for us). Anyway, we had it at Duke, and Warren did well. I can’t go with him for the scan, but Craig said that he was a bit wilder… chatting and legs kicking. Somehow, they got it without sedation. Not sure how long we can ride that out, but I’m super psyched that he did it yesterday.
Neurosurgeon is pleased with his progress. The CT looked pretty good, but we didn’t get the “all clear” yet without the shunt. Ugh. One of his ventricles has grown which they are watching closely. As his brain settles, we’ll know more about what his baseline will be, but… this ventricle cannot keep growing and growing. We need it to STOP. If it doesn’t, we’ll have to revisit a shunt again. Please, oh please… let my child be done with surgeries. We head back in November for our next CT to check the progress unless we notice any negative changes before that.
I will say… he’s doing this head turning to the left thing for the past several weeks. I don’t know what it is or if it’s anything. Nothing odd is happening… his eyes aren’t doing anything funny… it just makes me uneasy that this may be “something” neurological. I don’t want to ignore it just because I don’t want there to be anything to it. We’ll keep a close watch and see where we go with this. If anything worsens, it could be a sign of hydrocephalus which would need to be dealt with immediately (i.e. a shunt). Let’s just pray I’m worrying over nothing. Wouldn’t that be a welcomed change??
Otherwise, little man is doing well. Super chatty… sleeping very little (less than 8 hours a night for sure)… too many 5 AM hour wake-ups, especially on the weekend!!… just as cute as EVER! We head to Womack tomorrow for an appointment with our developmental pediatrician who was WONDERFUL when he saw her back in the spring, so I’m looking forward to picking her brain again. I hope I’m as impressed this time as I was before!
Long weekend… longer list of honey-dos for my beloved. Not sure how much “fun” will be incorporated. I will say that it has to be better than last weekend. We got new appliances in the kitchen and for lack of time will just say, EVERYTHING required some type of demolition. What a disaster, but now… it looks great! Ha! We’re still settling in.
Hope you guys have a great one!
Craig, Amy, and Warren
